Showing posts with label radiation. Show all posts
Showing posts with label radiation. Show all posts

Saturday, June 11, 2011

Alone with my thoughts

Alone with my thoughts, and I am sad. The tears are real coming down my face, so they must be there for a reason. Maybe a little lonely, maybe a little stir crazy, maybe a little scared. Aha, scared...seems to resonate, but why? Scared because....I don't know if I am doing the right thing, whatever that is? Sometimes we need reassurance that we are on the right path, and headed the right direction. Is 1 to person reassuring you enough, or does it depend on the type of relationship you have with that person? Am I supposed to be a big girl who does all her reassuring for herself? I feel like nobody knows, including myself. The docs all say they will do their best, as I am too young. What about the 80 year olds, they better get your best too!

I am still not satisfied with the "I don't know" regarding the mass on my chest. My dad thinks I have it stuck in my mind that an error was made, and I won't be satisfied until an error really pops up. Hmmm, maybe I have chemo brain and can't remember all of the conversation. Entirely possible, but I think the real culprit is a s simple as I don't understand. There is a lot about this disease that I don't understand. I have been soaking it all in the last 2 years when I want am and capable of it. Everything is not always important at every moment. I keep coming back to this though. Today I read something about secondary cancers caused by radiation. Guess where my mind went? Yep, right there....maybe that's where that mass came from. The mass that I can't currently differentiate between scar tissue and cancer. Which goes into, maybe I do need a second opinion. Nobody seems to think that I do, and in fact, no one is even encouraging me to for the sake of peace of mind. In all reality, if I thought that I could get a totally unrelated second opinion- I wouldn't mind. How do I go about this? I want an opinion outside of Missoula. If one is going to go for a second opinion, shouldn't you go for the best? Who is this, and how do I afford to get there?

Next bothering me....I can't just take a day and veg out in my pajamas without feeling like I am doing something wrong. Whether it's in my own head, or someone else's. For my own thoughts, I may be having a problem deciding whether I am depressed, or really just not feeling so hot. I say both, and to rest when I feel like I should. My parent's solution is to get a job. It would keep me busy and help with the money situation. That really just grinds at me. Other people work, and they must feel much worse then me. I don't feel that bad. Jobs are not that easy to come by, and I would much rather do a job that is fulfilling instead of any old job to survive. I get what I need to get done, done. Then I am done. I can't imagine trying to go to work on top of it all. All, like I do so much. Makes me feel more like I am lazy or depressed. There should be a test to gauge how I am really feeling, instead of trying to weed through tough girl attitude.

Let's see, my ex-husband says I am sitting here dying. That's nice to know, as I was not aware of this. I don't feel like I am. I need a test again- dying or just recouping still from married life? Hopefully I won't get chewed out for writing this, and all will be fine. I couldn't "fix" things there either, so I did fix it. I moved.

I have a hard time accepting that there is no fix. Funny part is, I can do that with cancer- as it mostly is out of my control. I understand that health related things, that may be the case. When it comes to money or love, there is always a fix....you just may not like the fix. Am I just talking to the wrong people, or am I really just supposed to keep riding this out and try not to worry? I don't even really make any sense right now. I just feel so much pressure to make the right decision. What decision you ask, hell if I know. Maybe it is because I feel so alone in all these decisions, once again...all what decisions?

Maybe the real root of the problem is I feel alone. Not really lonely, as I am in a houseful. Just maybe alone in the fact that unless you are walking in these shoes, maybe it is pretty hard to understand. Maybe when I tell people how I am doing, I am too strong about it? Crap, I don't know! Alone as in my family is 2 hours away. If I lived there, I would love to go visit...for 3 hours and drive back down the street to go home to my own bed where I am surrounded by the things that make me comfortable. I know that I need to get out more, as it does make me feel better. Sunshine on my shoulders makes me happy!

I feel like I am stuck in a bubble full of excuses, but I do not believe I am just waiting to die. Now I just need to figure out how to differentiate between excuses and reality. I no longer have total control over my reality, but that doesn't mean that I have none!

OK, time for an Ativan and a movie. I have rambled on so long, that I don't even make sense to myself. How can I make sense to others in this confused state?

Monday, March 7, 2011

Itch, itch, ITCH!

Kay, so this is a new one on me. My mastectomy/radiation zone has been itching like crazy since last night. Lotion doesn't seem to stop it, nor do essential oils of lavender, peppermint and Peace and Calm. Why the heck is it itching now? It never has before. In my mind, my mass is shrinking, and all is healing. You know- that itching that comes along with healing. Probably not really the cause, but it works for me in my mind until I find out the real answer!

Wednesday, February 2, 2011

My radiation burn at it's worst

OK, Here ya go! This one is for Pink & Plaid Warrior!  I believe we took this 3 days after my final nuking. After you stop, it will still get worse before it gets better. How amazing is that it didn't hurt. It was disgusting, but just numb from surgery. That was definitely my silver lining with radiation last spring! Ladies, I can't emphasize enough about the creams, and having your nurses look at it often when it starts to get red. Try and get the same nurse every time when possible, so you will both be familiar with the site. Note- this may come in very handy for dealing with allergic reaction type issues at some point in time. Better to have the same eyes comparing things sometimes. Put a liberal amount on EVERY time you get dressed to leave. Put another coat on at home when you think about it. Your nurse will know when to switch your cream, as you get closer to the end and start to burn. These creams are the best thing to keep you from burning too bad, and then for healing. I'll be curious to see what Pink & Plaids Nurse replaces  the sulfa stuff with? I believe my liberal use, under my nurses eye- is what staved off the worst of the burning until the last week. It did not bubble till the last week. Only a couple broke before the end. Thank god  it didn't start weeping till I was done...and could weep  at home in peace! Jk- just kidding, hehe couldn't help myself tonight. Ativan says shut this puppy down! It was yucky for a few days, and most of it peeled by the end. I was quite happy to not wear a bra for a couple of weeks. Good night, want to get my book work done early tomorrow, so I can do b-day stuff later. Might not get much time on Friday before I start crashing! Ciao!